AHEPA Marrow Total Number of Active Donors:
15,320
AHEPA Marrow Team Pappas 3rd Annual 2008 Donors:
2114
AHEPA Marrow Annual Report |
AHEPA Marrow Canister
Program
Philanthropy:
giving of yourself
AHEPA Marrow Donor Registry asks AHEPANS for support.
Last year, some
35,000 children and adults with life-threatening diseases could have
benefited from a marrow, blood stem cell or cord blood transplant.
Some found a donor within their families, but 70 percent were put in
the unthinkable position of desperately searching among strangers for
a match.
Steve
Pappas was among them. A high school English teacher and one of
the most respected basketball coaches in Chicago, Pappas was battling
an aggressive case of non-Hodgkin�s lymphoma this summer when doctors
told him he was in urgent need of a transplant. None of his relatives
turned up as a match. So, with a massive outpouring of support from
former players and coaches, and his friends and teaching colleagues,
Pappas turned to the AHEPA Marrow Donor Registry with a critical
mission to find a compatible donor. Because Steve was Greek and
because of the way the donation process works, that donor would likely
have to be of Hellenic descent. We found the Greek community to be
overwhelming in its moral support of �Team Pappas�, particularly the
St. Demetrios parish in Chicago where Steve had long been a basketball
coach. And we tested a remarkable number of volunteers�just under 3000
in three months. Sadly, though, it wasn�t enough to find Steve a
donor. He died on June 8, 2006.
Steve's fruitless search is pretty typical. Greek cancer patients
have a difficult time finding suitable marrow or blood stem cell
donors because of the very fact that they are Greek�people of Hellenic
heritage are severely under-represented in the national and
international marrow registries. And our own AHEPA Marrow Donor
Registry, with just 11,000 potential donors, is far from where it
needs to be to provide tangible assistance for the vast numbers of
Greek cancer patients. That's the sole reason why the Registry came
into existence nearly 20 years ago. In 1987 Dr. Peter Gallas was
stricken with acute myelogenous leukemia. He had recently received his
M.D. from Wayne State University in Michigan, and was serving as a
resident in anesthesiology at the University of South Florida in
Tampa. Peter�s family in the United States and in Greece was tested,
but no one came up as a compatible donor. Then, Dr. Peter Paulus (PSP)
of Ocala, Fla. stepped in and volunteered to head an AHEPA Committee
that would enact a nationwide effort to recruit funds and donors and,
most importantly, to find Peter a match. Unfortunately, Peter died
before a donor was ever found, but his legacy lives on in the AHEPA
Marrow Donor Registry.
Since then, over the last 20 years, the Registry has been managed
by a small but dedicated group of volunteers in New Jersey, led by
Angelo Pantazes. This group had the difficult task of raising funds to
cover testing costs for volunteer donors ($50 for each person tested),
and, amazingly, adding nearly 9,000 active donors to the Registry
database.
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